Local Organizations
www.dsahrc.org
The Down Syndrome Aim High Resource Center is a nonprofit organization located in Albany, which provides parent-to-parent and professional services and support to individuals with Down syndrome, their families, and the professionals who work with them.
www.heart.amc.edu/congenital_heart_program.htm
The Congenital Heart Program at Albany Medical Center provides comprehensive care for the child or adult with congenital heart disease.
www.mdsc.org
The mission of the Massachusetts Down Syndrome Congress is to continuously enhance the lives of individuals with Down syndrome through the education and support of people with Down syndrome, their families, their friends, their teachers and the community as a whole. To insure individuals are valued, included and live fulfilling lives in the community.
www.sanys.org
The Self Advocacy Association of NYS is a strong voice for and by people with disabilities, promoting independence, empowerment, leading by example, communicating, networking and encouragement.
www.centercares.org
The Center for the Disabled has helped individuals with disabilities and their families in the Capital Region and Northeastern New York for over 60 years.
www.parenttoparentnys.org
Parent-to-Parent of NYS provides emotional support and information to parents of children with disabilities or special health care needs.
www.advocacycenter.com
The Advocacy Center is a non-profit organization located in New York State that educates, supports, and advocates with people who have disabilities, their families, and circles of support.
National Organizations
www.ndsccenter.org
The National Down Syndrome Congress is a national advocacy organization which provides support, health advice, and details of its activities.
www.ndss.org
The National Down Syndrome Society provides parental, educational and clinical resources, with information on referral sources, research, and special programs.
www.clubndss.org
Club NDSS is a website for people with Down syndrome and other developmental disabilities.
www.nads.org
The National Association for Down Syndrome is a not-for-profit organization that was founded in 1961 in Chicago by parents of children with Down syndrome who felt a need to create a better environment and bring about understanding and acceptance of people with Down syndrome.
www.ds-health.com
Down Syndrome: Health Issues by Dr. Len Leshin provides news and information for parents and professionals on health issues related to Down syndrome.
www.disabilitysolutions.org
Disabilities Solutions is a resource for families and others interested in Down syndrome and related disabilities.
www.pted.org
Through a grant from the Cove Point Foundation, the University of Virginia Children’s Heart Center has developed a webpage that provides patient education for congenital heart disease.
www.eparent.com
Exceptional Parent Magazine is a monthly magazine for parents and professionals. Covers issues related to parenting a child or young adult with a disability.
www.beachcenter.org
The Beach Center is dedicated to making a difference in the quality of life of families and individuals affected by disability.
www.nichcy.org
The National Information Center for Children and Youth with Disabilities is the national information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals.
www.lalecheleague.org
The La Leche League provides advice and support on many aspects of breastfeeding.
www.bestbuddies.org
The mission of Best Buddies is to enhance the lives of people with intellectual disabilities by providing opportunities for one-to-one friendships and integrated employment.
www.fathersnetwork.org
The mission of The Father’s Network is to celebrate and support fathers and families raising children with special health care needs and developmental disabilities.
www.reedmartin.com
The mission of Reed Martin’s website is to lessen discrimination against children with disabilities by providing parents and school personnel tools for advocacy.
www.wrightslaw.com
Parents, advocates, educators, and attorneys go to Wrightslaw for accurate, up-to-date information about special education law and advocacy for children with disabilities.
www.vesid.nysed.gov/specialed/
The mission of the Office of Vocational and Educational Services for Individuals with Disabilities (VESID) is to promote educational equity and excellence for students with disabilities while ensuring that they receive the rights and protection to which they are entitled; assure appropriate continuity between the child and adult services systems; and provide the highest quality vocational rehabilitation and independent living services to all eligible persons as quickly as those services are required to enable them to work and live independent, self-directed lives.
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