The New Parent Contact Committee was established to provide up-to-date information and support to parents who have received a prenatal diagnosis of Down syndrome, or who have recently given birth to a baby with Down syndrome.
The goal of the committee is to supply hospitals, doctor offices and parents with New Parent/Expectant Parent Packets filled with current materials on the topic of Down syndrome. Included in the packet is:
Babies with Down Syndrome, by Karen Stray Gunderson (book)
Medical Records Booklet
Inspirational articles
Biography
Lending Library list
Growth Charts for babies and children with Down syndrome
Down Syndrome Health Care Guidelines
Newsletter information
Membership information
Contact information for other parents and families
The reason this packet is distributed is not only to provide information on Down syndrome, but also to ensure that prospective parents and new parents have the contact information for other parents and families in the area.
The New Parent Committee has heard many positive stories from families who have found the materials to be supportive. Our hope is to touch the lives of all new parents and families with our support and information as they begin their new journey through life. We are always looking for suggestions to make our committee more effective and we welcome new people to join us as we continue to reach out to new parents.
We await your initial call to the Down Syndrome Aim High Resource Center (DSAHRC) because it is the only way we know that you have had a new baby or are about to become a new parent. We are available to listen, answer your questions, offer support, and provide you with information related to medical, educational and community/social issues.
The Staff at the DSAHRC can assist you in finding the appropriate supports and resources in all areas. We can make hospital visits, home visits, or accompany you to medical appointments--whatever your needs are, we will do our best to provide the help and support you need. To contact the Down Syndrome Aim High Resource Center, please call (518) 438-1113 or email
To contact another parent, you may call: Virginia MacPhee (518) 783-9950 Veronica Swart (518) 762-2747 Renee Hallock (518) 785-3180 Tisha Graham (518) 584-6619 Christine Izzo (518) 371-2119
If you leave a voicemail, your call will be returned promptly. All information shared between families is strictly confidential.